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I was diagnosed with PC in 1/99 - just before my 49th birthday. It had spread
to the liver, so I immediately started on Gemzar. I am married with a 17 year
old daughter and 20 year old son. My husband is a diabetic and has been on
kidney dialysis for the past two years. He has had circulation problems and
is presently on disability with a foot infection. So I have basically gone
from being a caregiver to needing care. I am fortunate to have my parents,
although both are disabled. My father, 79, is in a nursing home. My mother,
81, is crippled with arthritis and is taking this very hard. My children,
particularly my daughter, are having rough times. I have one sister and we
are very close. She has been the one going to doctor appointments with me
since my husband has a real hard time accepting the dianosis and only hears
what he wants the doctor to say.I have been on a once-a-week, three week
on-one week off chemo schedule. My biggest problem was loss of appetite. I
lost over 25 pounds and had to be hospitalized for dehydration. I'm on Megace
and Pancrease, take a lot of Ensure and use popsicles for fluids. I spent a
few weeks at my mother's house which helped get me built up a little and I'm
doing pretty good right now. I find the chemo tires me, but no other bad side
effects. Because I'm inactive during the day, I have trouble sleeping at
night. All in all, it's good days and bad days.I just had a CAT scan and am
waiting for the results. I have a great oncologist. He does not look at
things from how much time I have. He believes that there is so much being
done in this field that he just has to keep me going and let the research
catch up with me. He mentioned trying a new drug if there is no improvement
or any spread based on this CAT scan.I have been following this web site
looking for younger people who have PC and trying to find success stories.
I'm hoping to get to the point where I can resume some normal activities. If
I go to the store once a week, even in a wheelchair, I find it tires me out.
I was always an extremely active person and find this very hard. With my
husband also disabled, we are finding it very hard emotionally and
financially.I have always been an optimist and have been the one to try to
find bright spots during times of trouble. I am trying to hold onto that
optimism, but find I'm not as strong as I used to be in cheering others up.
Posted 04/16/1999 10:55 pm by Janice
E-mail Address: JanGRock@aol.com
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