THE JOHNS HOPKINS MEDICAL INSTITUTIONS
Pancreas Cancer Web
Unfortunately I find myself here. Thanks to Richard Philibin for giving me
this cite, testifying in Montpelier, and meeting my mom and me at Hitchcock
while she had her pet scan.
My beautiful mother, age 67, was dx 4/8/05 with adenocarcinoma on the head of
her pancreas, 3.7 x 3.6cm, encasing the portal vein with at least 5 liver
metastases, small..but visible.
Her symptions were 'irritable bowel syndrome' for a year. Wrong. Other than
that she had been active, healthy, regular mammograms, colonoscopies, and
determined to enkoy her grandchildren...This is a huge shock.
The doctor who did the endoscopy told me in a 3 minute conversation that it
is inoperable, incurable and that chemo would be a palliative option, if she
chose it...with a survival estimated at 6mos to 1year. We thought she had a
Our first opininion yesterday at the onc Julie Olin in Burlington Vermont is
GEM/OX. Another reasonable choice said was gem alone. She said that she did
not use gtx much because it is too hard to tolerate. She mentioned a
clinical trial using gemcytobine and avastin.
We have a second opinion 5/4 at Darmouth Hitcock with Dr. Pipas and Dr. Barth
(the doctor who did Richard's whipple). We have a third opinion, which seems
like overkill at this point at Jhopkins because my sister lives there.
It seems that surgery is not going to be on option. My mother does not know
if she wants to do anything...and if she does she doesn't want to be knocked
out for her last days?
We have just finally told our family about her dx, which has been a huge step
because she is the queenpin in our family, caretaker of my 74 year old dad
with early parkinsons, and caretaker of her 93 year old mother who still
Is there anyone with this same profile and how are you doing? Has there been
any reasonable success with aggressive chemo vs palliative that we can cling
to for hope.....walking the line between hope and reality is a hard
one....Stage 4....can this beast be kept at bay?
Our onc. had said it is a detriment to watch the 'markers' and implied I am
spending too much time on the internet. Is watching markers wothwhile??
What is involved with a liver stent?
What should I watch for with my mother that can help the most medically????
Thank you. Jan
Posted 04/28/2005 07:36 pm by jJan(Vt)
E-mail Address: Bernasconi@aol.com
Return to Main Message List
No replies on file.
*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
Pancreas Home |
Feedback | Pathology Home | Oncology Center Home Copyright © 2022 The Johns Hopkins University, Baltimore, MarylandLast Modified: 11/11/2002 10:50 am