THE JOHNS HOPKINS MEDICAL INSTITUTIONS
Pancreas Cancer Web
I am a 51 year old female (born 1953) in Salem, Oregon and was diagnosed with
pancreatic adenocarcinoma in May 2004. I was asymptomatic until moderate
pain in the abdomen took me to the ER. An ultrasound showed multiple large
masses. I saw an oncologist the next day and had a CT scan, a mammogram, a
colonoscopy, and endoscopy and MRI, and multiple tumor marker tests. Good
news - No tumors anywhere except in the liver. My CA 19-9 was 2200. Bad
news - not operable. I have been on a constant 5-FU infusion pump, and every
2-3 week 'day spa treatments' of infusions of Gemzar and Oxaliplatin. My
side effects have been minimal (some hair thinning, loss of taste, neuropathy
in the hands and feet, easily tired, but very little pain). My current plan
is to reduce the size of the tumors and drive the CA 19-9 into the normal
range, and then seek a 2nd opinion for further treatment (perhaps liver
resect, cyberknife, etc.) My oncologist gave me an initial prognosis of 4-6
months. I'm at 8+ months now and still strong and fighting. My husband,
daughter and two sons are supportive, although a little freaked out at how I
could have such a poor prognosis and still 'look normal.' I work part-time.
Posted 01/23/2005 02:42 pm by Laurel
Return to Main Message List
No replies on file.
*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
Pancreas Home |
Feedback | Pathology Home | Oncology Center Home Copyright © 2022 The Johns Hopkins University, Baltimore, MarylandLast Modified: 11/11/2002 10:50 am