Pancreas Cancer Web


My name is Fred Post, AKA 'Fred in Can'. I am 42 years old, I have a wonderfull wife and 5 beautiful children. I was accidently or 'by the grace of God' diagnosed with Pancreatic cancer in 2002. It started with a kidney stone which sent the whole thing in motion. After a passing of a kidney stone my doctor suggested I see a specialist in kidneys. After some prodding from my wife I set up an appointment. I went to see a specialist in Burlington Ontario. He set up some xrays and once received, reviewed them and told me that, (and I quote) 'yes there were more stones but they were embedded into the kidney and therefore there was nothing they could do untill they started to move on their own'. I kind of left it at that and for a few weeks did not feel any affects from anything. Except for one nagging thing that just did not seem to go away. I kept waking up with a back pain. Lower left side.Over the course of the day it would eventually disappear. One day my wife said to go back to the doctor and she made the appointment. I told him about my meeting with the Kidney specialist and he said it was BS and we should get a second opinion. So he set me up with another specialist in Hamilton and off I went. This specialist went one step further and decided that yes there were more stones and they could proceed further. He booked a CT scan. I went through the CT scan and expected to go through the proceedure of blasting the stones to bits. a couple of days later I had called into work to take a day off becuse I was not feeling 100%. I was laying in bed and resting when the phone rang. I will not forget that day. My wife was outside so I answered the phone. It was my doctor and he wanted to see me right away. Today! So up I went. He asked me how I felt and then told me that they need to do some blood work, urine tests and another cat scan. I asked why? what seemed to be the problem? He told me that there was a 'suspicious mass on the pancreas' I remember saying a what? what the heck is a pancreas? I did not even know I had one. He did not want to alarm me. haha so He sent me to another specialist, (Pancreas) it was within 2 weeks that I had to meet with this specialist to have this mass confirmed. I will never forget that meeting. A little room waiting with my wife, talking about what it could be because during this time we found this message board and started asking questions. sooooo.... We thought we were prepared. We were both optimistic that it was a mistake and there was no problem. Well.... we were wrong, He came in the room and told us in fact it was cancer. But we were lucky, it was a slower growing cancer and surgery might take care of things. the odds looked good because they found it by accident. I took the rest of my time off work and decided to go on a trip to Holland (I was born there) with my family before we had to face this uphill climb. Surgery went as good as could be expected. it took 5 hours and they figured they got it all. I was not prepared for the recuperation time. I was on my back for about a month, could not eat properly for over a year, My plumbing system did not work properly for over a year. Slowly things got better, I could not gain my weight back because I could not eat properly, I had to eat 5 times a day, little bits at a time. I was so sick of being skinny I joined a health club and hired a personal trainer to get going. Within a year of the surgery I started working out and within six months of that I gained 30 lbs back and was down to 4 meals a day. I lost my job through all of this and my benefits, just befor Christmas of 2002. I recieved a letter from my employer telling me they no longer needed me. Nice hey? I had 3 check ups since and was scheduled to go back in this comming September. So far so good....but for one little thing.......for the past month I have been getting this nagging back pain...... on my lower let side.......July 2004. hmmmmmmmmm!

Posted 07/12/2004 11:18 am by Fred in Can
E-mail Address:

Return to Main Message List

No replies on file.

*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.

Pancreas Home | Surgical | Medical | Basic Sci | Docs | Registry | FAQ | Appts | Chat

Feedback | Pathology Home | Oncology Center Home
Copyright © 2022 The Johns Hopkins University, Baltimore, Maryland
Last Modified: 11/11/2002 10:50 am