THE JOHNS HOPKINS MEDICAL INSTITUTIONS
Pancreas Cancer Web
My mother is a healthy 56 year old. She begin getting sick in October
2003. Finally deciding to go to the doctor in November, She was first
diagnosed with hepatitis. After a few days of jaundice and itching, the
results came back that it was not hepatitis. The doctor then did scans and
was said to be gall stones. My mother was then scheduled to have her gall
bladder removed within a few days. The nurse at my mothers' doctor,
recommended a hospitol to go to, not trusting the one close by. My mother
and father proceeded to go in thinking it was a gall bladder removal. The
did more tests first. The doctor on call at the time in the emergency room
did not actually even work at that hospitol. Thank God he was there,
because he is the one whom found the tumor.
Then waiting for a few days to find out if it was benign or malignant.
She was diagnosed with andenocarcinoma on November 18, 2003. The tumor was
about 2-3 cm in the head of the pancreas. After the intial shock wore off,
we begin our search for a surgeon. My mother was not insured, therefore
that was a big problem for all surgeons. We had many say they would
perform the surgery then change their mind after finding out they were
uninsured. Others' said they would do it with 50% down. The hunt continued
for several weeks.
Turn down after turn down, my sister and I felt no one cared or would ever
help. They basically led us to believe that she could not live because she
had no insurance. My sister and myself were tired, depressed, and very
angry at the people not willing to help. Finally, my sister, e-mails a few
surgeons, thinking 'what the heck' , What can it hurt'. She ran across
this doctor in Dallas Tx. At first mom was not convinced this doctor was
for real. Finally deciding to meet with him, she said she knew right away
that he was going to save her life. A couple weeks later, surgery was
scheduled for December 19, 2003.
She went in for surgery around 11:30 and it was over around 3:00. The
doctor was very positive about the tumor being gone. She was in the
hospitol for 9 days. After returning home, she recovered quite well. She
is now doing followup treatment at Moncrief Cancer Center in Ft. Worth Tx.
She is still the fighter and intends to beat this beast.....
Alot has happened since my last update. My mother continued her radiation
treatments 5 days a week. She
finished those and then began Gemzar. She did Gemzar for several months
until her tumor marker rose from 44
to 100. After two weeks of her tumor marker rising, her oncologist
switched her to the GTX combo. My mom
was so worried about doing that particular combo. She prepared herself
for the loss of her hair and some
other known side effects. So she went shopping for wigs, and began to
actaully get used to them after a
Then on Wednesday Feb 9, 2005, she went for her normal treatment of GTX.
She had been doing pretty well on
it, and said she felt better than she had since this all started. Her
hair was still there except thinning
a little. Her treatments on those days lasted 4 hours. I looked forward
to taking her on those days. I
am a stay at home mom so it gave me the opportunity to get out of the
house without kiddos and spend some
time with mom.
For some reason that Wednesday, I decided to drop her off, having some
things I needed to do. My sister
picked her up and brought her home. She was doing well after the
treatment. At about midnight that night, I
got a call from my father saying that he thought mom had a stroke. I only
live about 7 minutes from them,
so I was there in a hurry.
She was laying on the floor and it was heartbreaking at the sight. But
once I saw her alert and aware of
what was going on around her, it put me at ease a little bit. She was
careflighted to a hospitol where
she was there for 5 days. The moment she was admitted they tried to give
the medicine that reverses a
stroke's side effects. Unfortunelty it did not work. We were still
hopeful that she may be wheelchair bound
and have normal brain activity. On the 5th day, the doctors said there
was no hope. The brain function
was to never return, nor would the movement of her right side or her
We were still hopeful with therapy that she would come home one day. But
the doctors said it was time to
admit her to hospice. That was a very hard day, and very emotional
meeting. She was admitting to a
hospice facility where she was no longer awake. She never opened her eyes
again the whole time my family
was by her bedside for the remaining 7 days. She kept fighting the fight.
I finally decided that it would
be best to tell her goodbye and that it was OK to go. After telling her
that, I left planning to return the
next morning. I did not make it in time. She passed away on Feb 21, 2005
at 6:03 am. The reason of death
was a catostrophic stroke caused by a blood clot in the main artery of the
My mother was a fighter, and if God had not needed her when he did, she
would still be here fighting the
beast and WINNING.
I love you mom
Lisa in Tx
Lisa in Tx
Posted 03/05/2004 10:21 pm by Lisa in Tx (mom)
E-mail Address: email@example.com
Return to Main Message List
No replies on file.
*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
Pancreas Home |
Basic Sci |
Feedback | Pathology Home | Oncology Center Home Copyright © 2022 The Johns Hopkins University, Baltimore, MarylandLast Modified: 11/11/2002 10:50 am