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Pancreas Cancer

Tracy was posted 06/29/2008 09:46 pm by Marie, Mich
E-mail Address: stjohn511@hotmail.com

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I am so sorry and I certainly understand most of what you are saying. My husbands kidneys are great ,but his liver is failing...much the same, they can't do treatment. He too had much abdominal fluid, 3 1/2 liters was drained about 3 weeks ago and it's all back. It's in his legs feet ankles too. He developed Esphagul Varices, he's been in the hospital 2 out of the last 4 weeks and 2 different hospitals. The first told us to call hospice and we didn't. After this last stay, he was ready to call. Hospice has been so great. They have provided everything to make him comfortable, but they are just pumping him full of pain meds, they are doing things to really make him comfortable to try to get him up and walking more. That's great! We know we can't cure him, but lets make his last days happy! They prescribed a high dose of lascis & Aldecone(sp?) for 3 days. He was up every 2 hours for 24 hr.s peeing. So this morning I called and they suggested a catheter. They came this afternoon, then I gave him the lascis again and it's working. He'll take them again tomorrow. They said if that doesn't work and remove enough fluid, they'll give him a shot of lascis direct into his abdomen. We haven't had any side effects from his liver since the incidence the other Thurs night. So hang in there, even if you have to call hospice for a short time, he can always sign back off and then get treatment. Xeloda was very hard on Tom and I think it lead to some of the problems he has now. His Onc. would like to try Taxotere, but pretty sure he'll ever be strong enough again, he still holds on to that hope though. I think when things start to go really wrong, you just have to let go and let God take over. You guys are so young though, I can't even imagine that. I know how hard this must be for you. Try to keep it together though, for Joe's sake. I was pretty stressed when he was in the hospital too. Things went so much better once I called Hospice. Even though I'm the caregiver, I have someone to call, someone on my side, someone that really care. An Aide comes once or twice a week to shave him and clean him up good. Now I could do this, but he didn't want me shaving him and it's so nice to have someone do it. A Deacon is coming tomorrow. A nurse has been here everyday. I can call them 24/7 and someone that has his case history in front of her actually answers my calls and my questions and within a couple of hours my problems have been solved. What a relief that is. write me anytime. This sucks, but we are all going to get through it. He is so much more at peace at home. Did they actually say why his kidneys aren't functioning? Take care. Marie

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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