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Discussion BoardJennifer was posted 03/04/2008 11:59 am by Cheryl
Hi Jennifer--welcome to the board. I don't have an encouraging story for you
but I think it's different from yours. I lost my dad after a 3-month illness
to cholangiosarcoma. There was a big difference in his disease process
compared to your mother's though and I think that is important. My dad never
turned yellow; he turned gray. I am thinking there is a better prognosis for
those who turn yellow than those who don't because I think those who turn
yellow have more gallbladder and extra-hepatic bile duct involvement while
those who turn gray have more intrahepatic bile duct and liver involvement.
When my dad was diagnosed, the tumor encompassed 1/3 of his liver with little
metastatic pieces all through his liver. He had a very poor appetite and had
been losing weight. He tried Gemzar but never completed his first cycle of 7
treatments, one weekly, as he developed blood clots in his legs and
ultimately clots in his lungs.
This is not a good story and I hesitated to share it because I'm afraid it
will make you more fearful and sad. I know, I've been there. When I posted
and read on this board, my stomach would drop to my shoes I was so afraid for
my dad but I also needed the reality of knowing what could happen and there
are those here who have so much knowledge. I am hoping my story will give you
encouragement and not discouragement. From what I've learned, it seems the
least liver involvement with this cancer, the better and I truly believe my
dad's liver was in very tough shape already before he was diagnosed and they
Please keep us informed with what is going on with your mother. I will keep
you and your family in my thoughts and prayers.
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