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Pancreas Cancer

Sheryl was posted 09/01/2007 06:55 am by Susie
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Here's how it went for my mom. She had the whipple and then did all the typical adjuvant treatment. Scans all through that, and CA19-9 were normal. Her # in January, at the end of her Gemzar treatment, was 14. Scans clear. In March, it was 190. Scans clear. In May it was 359. Scans clear. August 10,519! CT is clear. PET shows two spots on the liver.

My mom is having an easy time getting PET scans because she's on medicare and enrolled in the study they're doing about them. They don't cost her a nickel, and this is probably why her doctor is ordering them so frequently. What about an MRI in your case? It seems those are able to pick things up earlier.

I did read one time, some study which showed scans picking up mets 2 to 9 months after the CA19-9 rise. I posted about that here before and somebody asked me where I read that. I googled and couldn't manage to find it again. I don't remember how large the study was - seems most PC studies are very small. But that range of months has stuck in my head.

I really tried to tell myself her CA19-9 number wasn't too big of a deal and if she was somebody who didn't produce that number, all we'd have is clear scans and we'd be assuming everything was fine, but that huge jump to over 10,000 did me in. I'm actually surprised nothing was picked up on the CT. Her number before her whipple was 1512. You'd think with 10,000, they'd see something obvious in there.

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