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Pancreas Cancer

Mike was posted 07/30/2007 09:54 pm by lillian
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Like you, Lee and I believe Emory to be an excellent hospital. His care during and after the whipple was great. I know Kauh is treating several PC patients now, and most like him. Even Lee likes him; I find him lacking for a couple of reason.

We had to ASK for the enzymes, and we had to insist on Lee's radiaton. Those were a couple of biggies with me about Kauh.

Now about those enzymes, if you have diarrhea, pale stools, floating stools, frequent cramps, or orange greasy stools you probably need enzymes. Lee didn't have any of those things until a couple of months after he began chemo. So do be aware of what's happening with your digestion.

**A few more important things to keep in mind: make sure you ask for copies of your blood work each time you go for treatment (chemo, whatever). Also try to get the written reports from your MRI and scans BEFORE your follow-up appointments with Dr. Kauh; otherwise, he'll hand you the report as he enters the room and you won't have time to peruse it and ask question during your office visit. Ask at the desk in the MRI/scan dept. and they'll probably mail or fax it to you in advance of your appt. with the doc. If you aren't already a diabetic, there is a strong possibility that you will develope type II diabeties; so keep a watch on your blood sugar. ** and there's more. Get any scripts Kauh gives your for chemo side-effects filled in advance of starting chemo; you'll want them at hand when you need them. Be sure to drink as much water as you can and walk every day. The water is especially important the day before and after chemo. On your chemo days, plan to have someone go with you to the treatment center and take along a packet of snacks, bottled water, or other beverage and a lap throw. They frequently give out of warmed blankets and the sandwich shop upstairs has a very limited selection of foods. I'm sure there's more I should be telling, or I've already told you too much and became redundant!

Good luck with your treatments and do keep us posted. Prayers. Lillian

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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