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Pancreas Cancer

Reply was posted 04/30/2007 11:41 pm by Anonymous
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It is still being tested by many large institutions and it can still hi-light inflammation areas. Sadly so can a ca19-9 test so until they decide many onc's don't want to put their eggs in that basket. All it can do is tell them there is activity, of what nature that activity is...? There have been people on this board who had cancer spreading through their body and growing and the pet scan never showed any activity. This person was told they were cancer free. What caused the negative result? Who knows. It could have been user error or it doesn't work for everyone. It is just another tool, a pretty expensive one at that. Some have been hit with bills around 6,000-8,000 to pay out of pocket when the insurance turns it down. I think there was a trial going on and medicare would cover if they registered at one of the trial sites to have it done. I don't know if it is still going on.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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