|*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions. |
A couple of questions. Is his hospital bed set upstairs? Any way it can be downstairs so he doesn't have to be going up and down stairs? When my Dad was on Hospice, it was his surgeon who said to put him where the family gathers and by a window so he can look out. We were told to focus around him and not put him in a bedroom out of site. So with our Dad, we made the living room his bedroom. He was a part of all daily activities going on. When he needed, he used his wheel chair to get around. He liked being there and it made it easier to take care of him in some regards. When he got worse, his bedside commode was there and any guests were asked to go to another room to give him privacy or to leave.
Make the most of this time with Steve. Let him by all means be able to do things as long as he can. It is good for his mental well being to be able to go out and enjoy what he can while he can. Please give him the freedom to do so. I know it is extra work, but it means a great deal to him.
My Dad had signed off of Hospice and went on Home Health care, because he still wanted some things not allowed by Hospice. Two weeks prior to his death, I drove him to see his surgeon for one last visit. It was over two and a half hours away. We spent the night before in a hotel and then appointment in the morning. Dad was in a wheel chair. It meant a lot to Dad and it was a very special time between the two of them. His surgeon offered things to help Dad, but they also got to say goodbye since they had been doctor-patient for almost five years.
So, let Steve escape at every opportunity. Keeping his sense of humor is a
wonderful thing given whatever amount of time is left. Enjoy this time. As
difficult as this part of the journey will be, it is a very special time,
too. Having been where you are, my heart goes out to all of you. Advice
given to me, was to focus on his needs and comfort. So have some fun, make
some memories, and hugs to all of you. Take care of yourselves,
Reply to this message | Return to Main Message List