|*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions. |
I don't know this doctor, but I don't know many of the specialist accept for JHH MD and Virginia Mason.
I had the same situation with Portal envolved.
I flew to Seattle to Virginia Mason and I also sent my records to MD Anderson in Texas. Virginia Mason did not recommend radiation for me. They wanted to shrink the tumor with chemo of Gemzar and Taxotere for six months. They stated they were having great results with this combination and had high hopes that my tumor would shrink and I would have surgery. It did, I had surgery in October. I then had the radiaition and 5FU AFTER surgery.
The theory behind their recommendation was a few things: first, the radiation could render me never operable because the scar tissue could make it impossible to get the tumor off of the Portal or SMA. Also, they believed the radiation to be more beneficial after surgery. They also believed that if the cancer was to show up in other places during this six month period of me doing chemo that it was most likely there all the time and just too small to show up on imaging. Therefore, the surgery would have failed.
Now, MD Anderson had a similar recommendation, but their thing was to do six weeks of radiation and chemo, like your dad is being offered. But then they said that because of the Portal envolvement they might opt to do 3 months of chemo followed by chemo and radiation. I might have this one mixed up a little, but look up MD Anderson on line and I think they have something posted about adjuvant treatments.
Johns Hopkins - was going to be chemo of 5Fu and Radiation to shrink the tumor - but they gave me the least hope of my tumor shrinking. Saying that IPMN's like mine did not respond well.
I did not have any spread and they did not think I had lymph envolved so this might be the difference in treatments, not sure.
I thought I would post this so you would have some more, not like you don't have enough, things to look at before making decision. It is interesting how different places have totally different approaches with treatment of PC.
I picked the Virginia Mason theory because I thought I was too weak to do the radiation and I did not want to put all my eggs in one basket so to say. Also, my tumor was small and unique. It was the size of a large pea, but incapsuled in a fluid filled sack. It was not an IPMN as originally thought and I don't really think they knew why it looked so much like an IPMN. It was a solid adeno in a clear liquid sac.
I wanted to do the radiation after surgery and I wanted to do the Picozzi
protocal after surgery and it would require I do the radiation after surgery.
I also liked Dr. Vincent Picozzi.
Reply to this message | Return to Main Message List