|*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions. |
She went ahead and had embolisation w/o the chemo on the other lobe about three months after the CE because her doctor said the tumors didn't show enough shrinkage to make the chemo worthwhile since it made her so sick.
Her tumors didn't grow/shrink much after these procedures, but her health deteriorated dramatically after them. She lost her appetite for foods she had loved her entire life. She began throwing up. She lost tons of weight. Her tumors began producing hormones that caused horrific rashes. We found out after research that she had Glucagonoma Syndrome with something called Necrolytic Migratory Erythma, a rare type of Islet Cell Carcinoma.
Long story short, we did not do enough research, talk to knowledgeable doctors, find out enough information to get Mom the best care possible.
Watch your dad closely. Encourage him to get tons of opinions. I had to remind my mom that her doctors worked for HER, not the other way around.
Reply to this message | Return to Main Message List