Pancreas Cancer Discussion Page:
An Unmoderated Forum
*
 
Support pancreas research*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER

Pancreas Cancer

Reply was posted 08/03/1999 12:43 am by Anne D.
E-mail Address:

Message Text
It is very frustrating, not feeling like you know what you are doing. We are fumbling through too, but our hospice has been wonderful. Are you sure you are asking the right questions? Don't let that nurse leave before you are comfortable that you have all your answers. And remember, hospice isn't there to do it for you, they are there to help support you and help you do it for your loved one. I think sometimes we are just hoping someone will come in and make it better. But, unfortuanately, that can't happen. Ask Ask Ask - you have to let them know what your needs are, so they can help. It surprises me that your dad is still experiencing pain. My hospice nurse has assured me that my dad will not be in pain, that there are so many pain relievers out there, we shouldn't have any probelems. If your dad is on the patch, that doesn't work well on thin people, as it is absorbed through the fat tissue. I have learned so much I never wanted to know about pain management. Talk to the nurse about his pain, and ask what else can be done for it. My dad too is refusing to use his hospital bed and sits in his chair, and when he is uncomfortable, he leans over and says that relieves the pain until the meds kick in. We also had a problem managing the pain until we started giving him the medicine on a regular basis - not as needed. The blood levels must stay constant to provide effective relief. I thiink I can safely say my dad is at the end of this journey, and we will be saying goodbye very soon, and we have been pretty lucky in that we have been able to keep his pain under control with little difficulty. My thoughts are with you Anne D.

Reply to this message | Return to Main Message List
Responses

No replies on file.


*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


Pancreas Home | Surgical | Medical | Basic Sci | Docs | Registry | FAQ | Appts | Chat

Feedback | Pathology Home | Oncology Center Home | Search
Copyright © 2020 The Johns Hopkins University, Baltimore, Maryland
Last Modified: 11/11/2002 10:50 am