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Pancreas Cancer

hospice at home was posted 07/31/1999 10:13 am by Cathy P
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As some of you know, we just started hospice care for my dad. I wanted to update everyone on how that is going. He seems to be going downhill quickly. I am concerned that he does not want to be in his hospital bed. My mom started screaming at 5 this morning. He had stood up to urinate. He got weak and just started to crumble. My mom is handicapped; so she's not much physical help to him. I was able to hold him until we got some neighbors to help us get him in his chair. I want my dad to have control over his care; but he's just so confused. Sometimes he just gets up and then doesn't know why. It can be quite an ordeal to get him back in his stupid chair that he insists on being in. I call this a stupid chair because its a special $1000 back chair that has a foot rest attached. It is very difficult for a weak, barely mobile person to get into. My dad's is so much pain that sitting up in this chair all hunched over is the only way he really feels any relief. Yes, he is on tons of morphine. I wish the hospice service could be with us more. I think the nurse is only going to visit us twice a week. I think we're doing an okay job though. I just wish I could be there all the time. I can be on the weekends. However, during the week I can only do 3:30-8:30 or so. Has anyone done hospice care in a freestanding hospice facility. We have one here in Houston. I'm thinking of checking it out if things get to be more than we can handle. Wish us luck.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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