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Pancreas Cancer

Thank you, drug warning was posted 06/30/1999 10:52 am by Cheryl S.
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Many thanks to Marsha, Lana, Eve, Gosia and Mary Jo for your kind thoughts and encouragement - My boys are 4 and 6 and are in the middle of t-ball, swim lessons and the older one is in tennis. Our kitchen has been in the midst of a remodling job for months and the downstairs remains in complete disarray. Today Culligan comes to rehook our system up and the last of the countertops (which we sent back four times for rework) is finally installed. Today I'm actually going to get my mop of hair cut and tomorrow a long needed massage awaits me - My back is very fatigued from the Chicago labor of love. So, as you may have guessed by the above, I feel like I'm getting a handle on life here again. Feels great. Now, the other reason for writing - we have noticed that with BOTH hospice programs the recommendations for meds led to a semi-comatose condition for mom. In an effort to keep her comfortable during her last days, they actually reduced her alertness and hence appetite and need to void/eliminate. So, if we chose to continue with the recommendations 'car blanche' mom would not have made it this long. It raises the issue of what comfort means to each individual family. For mom, comfort comes in making memories, being able to hear the birds sing, enjoying her last few meals, telling some jokes and writing notes to grand children. As long as the pain remains distant, the 'discomfort' associated with the end of the illness ie: minor anxiety attacks, aching bones, sore skin, is not enough of a motivator to remain too drugged up right now. That may change tomorrow, but for today, it's where we're at. So just a heads up for those who might be entering the hospice program: They do not intend to overmedicate, just want to make a patient comfortable - but you may have to help your loved one define what is comfortable for them and help THEIR definition of comfort to be managed appropriately. Hugs and love to all my friends here Cheryl

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