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Pancreas Cancer

please keep reading and writin was posted 06/30/1999 09:38 am by Lori
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Laurie, you did exactly what this site is for!!! Believe me, I am the QUEEN of ramble!!! This is a devastating diagnosis, but I am glad to hear your husband has the FIGHT in him!! Attitude is everything!! Sometimes I think it is harder for the loved one caring for the one with the illness (then I feel guilty for thinking that!!) You'll experience a full range of emotions, it is normal!! You'll hear it said over and over, you MUST take care of yourself!! (It is so easy to say and so very hard to do) I do work outside the home and my husband Matt went back to work full-time mid-April (he's a firefighter in AZ and I worry constantly when he's at work!!! but he needs to do it to feel normal!) so I do have an "escape" of sorts. But once you're involved in this, it is hard to escape, it's always in the back of your mind even on the best of days!!! My son gave me a gift certificate for a massage as a Christmas present, in April I used it and I've been going every 4-6 weeks since!!! It is hard to do this for myself but I made up my mind to JUST DO IT!!! It's the best thing I've ever done for me! There is a TON of information on the net and on this group; you'll read alot about nutrition and supplements; let me just share the latest tidbit I picked up yesterday (where have I been, evidently this came out in January!!) Raspberries are an excellent source of ellagic acid which "has been shown to fight cancer".....do a search for "ellagic acid", the info is amazing!!! See how I ramble?? Hope this has been even a little helpful....remember, take care of Laurie too! With love, Lori (husband Matt/46yrs old/DX 12/3/98, Whipple done/finished 5 1/2 weeks continuous infusion 5FU and daily rad end of Feb/back to work mid-april/ April 30 CT showed "possible recurrence and possible liver mets with doubling of CA19-9/started Essiac Tea and supplements on Bob Karjala's regimen/ 2 CTs since show "no change" and the "possible liver mets" are probably "fatty infiltrates" (yeeehaa!!!)/although CA19-9 has continued to rise, last count 501/ having an EGD today for gastric outlet obstruction (started having "full feeling" and vomiting about 6 days ago) this is probably from radiation damage or surgical adhesions, we're hopeful it's not the cancer acting up)

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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