
THE JOHNS HOPKINS MEDICAL INSTITUTIONS
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ABOUT MY WONDERFUL MOM
After reading several beautiful stories, I decided I needed to do this to
possibly help me thru my grieving period. I still cry so easily and try to be
strong--but being an only child,and losing my dad 5 years ago and now my
mom--Nov.2,2005 I feel I truly lost my Mom,sister and best friend all at
once. She was 86 and I was blessed to have her this long(her father died of
PC when he was 63(my age)--which gives me more reason to be fearful of what I
may have ahead of me. My mom had her first pain(upper abdomen into her
back)Aug 5,2005-my dads birthday. I told her as she aproached her final days
that dad was letting her know that he wanted her with him in heaven-as she
had never gotten over his death of congestive heart failure. She was
diagnosed with 6 egg sized cysts in Sept,and after a few procedures
(injecting alcohol into the cysts) they basically told me that even tho they
had not found any malignancy--her markers were very high and definetly
pointed to cancer.On the 8th of Oct. she was put into the hospital-with her
first signs of Jaundice--when I spoke to the oncologist they said that any
treatment would only give us satisfaction--but her quality of life would
deteriorate quickly as it did. They did put a stint in to drain the bile,and
it did ease the itching and her color got better. They told me I needed full
hospice care as she was catheterized and could no longer get out of bed-even
with my help. Her pain had gotten so bad that she had gone from morphine
every 4 hrs to every 2 hrs--then to Oxycontin. She would have good days and
bad days--but the nurses and especially the aides did everything in their
power to keep her comfortable both with pain meds-any food that might sound
good(but rarely did she take more than a few bites or drinks)They gave her
back rubs--that felt so good no matter what time of the day or nite--mine
didnt help as much tho I did try. My daughters and grandchildren came to see
her as much as possible and could come any time day or nite. One of the
hospice units is in our hospital in the western side of Cincinnati,Ohio and
it was perfect for us and I felt comfortable leaving her in their care--which
eased a little time for me to be with my husband at night. He has diabetis
as well as an inoperable brain aneurism in his brain stem--so I need to be
with him as much as possible also.(He is only 64 but wears a diabetis pump
and does have lows occasionally) By Nov.1,mom lost consiousness and Nov.2
she was gone. My son who is in the military called her daily from Virginia
and promised he would be home Nov.12 for he and his sons birthday.He is
training to go to Afganistan with a seal team and couldnt come home till
then. She understood, but told him she didnt think she would make it that
long and she was right. In less than three months she was gone and has left
such a void in our family. My youngest grandaughter(11) is getting counseling
at school as she cries so much for her. I know time will heal and we try to
talk about the good memories--but getting her house ready to sell has been so
hard, as she kept everything.She had not even done anything with dads clothes
and it was the only house they had ever owned. My dads business was
photography--so I have boxes and albums of pictures to go thru. My husband
has been a big help--but unfortunely the girls are busy with their families
and only come occasionally to take a few things home. I think I will stop
now as I am truly not complaining. I would do anything to have her back,,but
am so thankful to have had her as long as I did. If I do have this gene in
my body-- i hope to live as long as mom did vs.my grandfather who suffered a
year and died at 63,many years ago. It doesnt seem that there is much more
known about this dreaded disease,than there was in the '50,s when he passed.
Thank you for listening to my story. She was a beautiful lady,that loved her
3 grandchildren and 7 great grandchildren.
Posted 01/05/2006 06:44 am by Sheri
E-mail Address: bsk1961@sbcglobal.net
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