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This is a bit longwinded, but bare with me! My messages are usually quite short; about time I had a longish one!
Mum appeared slightly jaundiced on Christmas Eve but told me it was my imagination and as she didn't have any itching, I thought I was getting paranoid. She was sick but had a headache and has always suffered from those. She felt a bit better, so I insisted she get her bilirubin checked after the holidays just incase.
Christmas day she started shaking and asked the heating to be turned up (she is always warm and never has the heating on if I'm not there, never mind up!), her temperature was high and she started being constantly sick. The GP took an hour getting back to me (I had to argue that it was the stent, as she told me it shouldn't be blocked as it was only put in in August); the ambulance took an hour and a half.(If I'd taken her to the emergency room we would have had to wait for many hours with all the drunks!). In the assessment unit they were going to give Mum oral morphine! until I pointed out that she needed IV as she couldn't keep anything down! She got it! Mum finally got on the ward.
Mum's consultant was off for the xmas hols. Mum is still recovering from the aborted whipple (even though she has done more then she should) She was under a different consultant when the last stent was changed in August. When the last one was inserted they replaced it with a plastic one, instead of a metal one as they promised, she found out after they had done it! It's a funding issue, apparently! I kicked up such a fuss last time that they will insert a metal one next week.( They wanted to insert a plastic one yesterday and then a metal one next week! She refused, as not only will she have to go through the same procedure twice; it will allow them backtrack about the metal stent. She is very jaundiced now, on IV antibiotics, vitamin K. The stent should be put in around January 3rd.
I am very angry about the stent. Mum loves xmas and after the 10 hospital stays since she was diagnosed in March (on her 54th Birthday), I hoped for a lovely xmas and New Year with her. I hoped to have good memories of this year, as even though I don't like to think this, I know it could be our last one together.
Mum still isn't itching even though she is now very jaundiced (unlike the previous two times), so please keep an eye on yourselves and your loved ones, and trust your instinct. It's normally right.
I won't be posting as much as I have been, so take care all. xx and Happy New Year
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