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PATIENT NAME: ME AGE WHEN DX:53 (ALMOST 54) AGE NOW:55 5'3' Weight: 98 FEMALE DX: 6-04 WHIPPLE :8-04 PATHOLOGY REPORT: NOT CANCER BUT PRE CANCEROUS CELLS FAMILY HISTORY, MOTHER HAD PC LIVED 5 MONTHS AUNT HAD PC LIVED 1 MONTH UNCLE HAD PC, HAD WHIPPLE 6-04 NOT DOING TO WELL GRANNY HAD PC AND DIED 1 YEAR AFTER DX (SHE WAS THE MOTHER OF ALL OF THE ABOVE).

I had diahrea for about a year when I decided to find a different Primary care phys. The new Primary sent me to a GI dr. He ran some blood work and when it came back it showed my CA 19 9 was elevated and my enzymes were all messed up. He then asked me if I was a heavy drinker and I told him no and he said 'you may have a problem with your Liver or Pancreas ! So I told him the family history and he recomended a ERCP test asap. Well the ERCP test was no good since he couldnt get into the head. We tried again with a brushing to get a few particals for testing and failed again. They could however see that the head was blocked and there was another tumor in the center so I ended up going to SLOAN KETTERING Hospital in NY for a consult. My insurance wouldn't ok the Whipple to be done in NY so I ended up in Jackson Memorial in Miami. So far I am doing ok except for the weight loss (I weigh only 98 lbs) I was 153 before surgery and the pain cause by scar tissue that is rapidly growing. I also STILL HAVE DIAREAH !! I am very weak and the idea of eating makes me sick. I Swallowed the camera and the food is in my lower intestine in less than 6 minutes. It shopuld take around 12 hours to get that far. So I am not getting much nutrition from anything I eat. Most of the postings I read are from patients that actually have or had PC. Most have had Cem. I know that I will eventually die from PC even though I only had PRE CANCEROUS CELLS. Welll thats my story. I am in on the study at JHH and pray for everyone daily. I want this cycle broken and I want to know that my grandchildren have a chance at living a life WITHOUT PC.! Thank you for listening to me. Linda


Posted 12/27/2005 08:54 am by LINDA IN FLORIDA
E-mail Address: coolflagram@yahoo.com

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