I had diahrea for about a year when I decided to find a different Primary
The new Primary sent me to a GI dr. He ran some blood work and when it came
back it showed my CA 19 9 was elevated and my enzymes were all messed up. He
then asked me if I was a heavy drinker and I told him no and he said 'you may
have a problem with your Liver or Pancreas ! So I told him the family history
and he recomended a ERCP test asap. Well the ERCP test was no good since he
couldnt get into the head. We tried again with a brushing to get a few
particals for testing and failed again. They could however see that the head
was blocked and there was another tumor in the center so I ended up going to
SLOAN KETTERING Hospital in NY for a consult.
My insurance wouldn't ok the Whipple to be done in NY so I ended up in
Jackson Memorial in Miami.
So far I am doing ok except for the weight loss (I weigh only 98 lbs) I was
153 before surgery and the pain cause by scar tissue that is rapidly growing.
I also STILL HAVE DIAREAH !! I am very weak and the idea of eating makes me
sick. I Swallowed the camera and the food is in my lower intestine in less
than 6 minutes. It shopuld take around 12 hours to get that far. So I am not
getting much nutrition from anything I eat. Most of the postings I read are
from patients that actually have or had PC. Most have had Cem. I know that I
will eventually die from PC even though I only had PRE CANCEROUS CELLS.
Welll thats my story. I am in on the study at JHH and pray for everyone
daily. I want this cycle broken and I want to know that my grandchildren have
a chance at living a life WITHOUT PC.!
Thank you for listening to me.