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I posted ealier about my husbands red and blotchy legs. Three oncologist's looked at them and two thought it was due to low platelets and the third had no idea. His platelets are over 100 and have been as low as 37 and he had no red blotchy legs then so we are not convinced it was low platelets. He had a very rough week with the spots on his legs and then his knees and ankles getting stiff.
When we got home from Iowa City on Thursday night he could barely walk. None of them could explain the stiffness either. They attributed it to the side effects of chemo, which he had a week off so we don't understand that, but I guess anything is possible.
The second opinion went good and bad. Good that the oncologist's in Iowa City agreed with his current oncologist so no change in the Gemzar only treatment. Bad that we were hoping more could be done. If the CT scan in June shows progression then they will look at changing treatment and he may be eligible for a clinical trial in Iowa City. Will find out Monday if he is eligible. The oncologist in Iowa City went through all the current combo's and told us why he would and wouldn't try them on my husband. My husband had a heart attack in December, low platelets, bleeding episode, and Hep C (liver enzymes slightly elevated, not worrisome) so all the current combos would put him at risk. At least I know now why none of these options were presented earlier.
Friday he had his treatment and by Friday night he had a fever. This is the first time he has had a temp after treatment so really think the red legs and stiffness were due to an infection and thank goodness it didn't get too bad. Due to temp he is on an Levaquin for 5 days. Today his stiffness is much better but still has pain due to his enlarged spleen. Which oncologits do not recommend be removed due to history of bleeding.
All I could do yesterday was cry....I hated seeing him feel so bad and I know
it is hard on him when he can't carry our miracle 18 month old daughter.
Thoughts and prayers to you all. Love KellyB
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