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Pancreas Cancer

Continued frustration was posted 02/27/1999 04:02 pm by Lana
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The doctors called once again with no answers and no real suggestions. How long does one continue to try to get a positive diagnoses for PC? On one hand it seems so self destructive and on the other hand it seems to be the only hope. We are feeling very frustration as no diagnoses, no treatment, no possible cure. After six months of biopsies, CT scans, different doctors, different hospitals and continued lab work it is still just "possibly PC". That's good, but on the other hand doctors are offering no treatment for anything else. It seems like "if it's not cancer, we can't help you". Their only suggestions is continue to take biopsies until they finally get a positive biopsies. There are other things that don't seem to fit the pattern, but they don't seem to have much weight in the medical community, i.e. pain not atypical, CA19-9 elevated, but not all that high 135, CT image unchanged in almost 6 months, as it is CA19-9. The only two things that seem to carry weight is weight loss and involvement of the vessels. We don't know where to turn. More biospies? Do nothing except control pain and fatigue (if possible)? Try naturalpatic? Suggestions? I feel like I am complaining, and for that I am sorry. We are just so frustrated like all of the people here must feel. Searching for answers is so difficult. The people that post to this board seem to be incredibly strong. Some days I feel strong, like I can help my husband and children. Other days I don't feel so strong (even though I would never let them know). There is so much saddness here, but at the same time so much strength and endurance. Thanks for being there. Not being alone helps.

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