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Anyway, and this is only a sggestion, when I found that the conflicting advice was just too much, I rang a couple of the GI specialists at Peter MAc and they were very helpful. You could even ask to be referred to them. I am sure if they know you are in the country and knowing how serious it is, you would be able to get an appointment earlier, The thing is, they approach their treatment from a team perspective. The onc and the radiation onc review the cases together. The doctors I have spoken to on various occasions were Dr Michael Michael, Dr John Zalcberg, (both medical oncs, specialising in PC and GI cancers) and Dr Trevor Leong (he is the radiation onc. They were all really helpful, if they were unavailable when I called they always called back. It is worth a try, only a phone call. Having said all that, my mum would never go for a second opinion anyway, so we never got to see them.
The second thing I would say is that Tony sleeping and living on painkillers etc is NOT OK. Mum's current onc bases a lot of his views on her success or not with treatment on whether she is living well and feeling well. It does not sound like Tony is doing that at present and it needs to be got to the bottom of, QUICKLY.
My oldest son started school on Thursday too. It was a very emotional day and I can only imagine with what you are going through as well with Tony, how it must have ripped at the heart strings. How did she survive the day? Was she happy about going back on Friday? Lochie wasn't. He had a bad fall on his first day and ripped all the skin off his knees and elbows, so it wasn't a good start for him. Still, if that is the worst that can happen I guess we'll be doing OK.
I hope this is of some help to you and I really hope you can get some action
from someone quickly. Once something is being done you will feel much
better, it gives you a focus, rather than the fear of now knowing what is
going on in there. Thinking of you and take care. Janine
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