Pancreas Cancer Discussion Page:
An Unmoderated Forum
*
 
Support pancreas research*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER

Pancreas Cancer

Bear was posted 01/31/2004 06:19 am by janine
E-mail Address: janine7@optusnet.com.au

Message Text
Hi Bear-I was wondering how things went for you on your visit to the onc and just read your post. Sorry it was so frustrating for you. I understand how you must be feeling. The delays and indecision with mum drove me nuts.

Anyway, and this is only a sggestion, when I found that the conflicting advice was just too much, I rang a couple of the GI specialists at Peter MAc and they were very helpful. You could even ask to be referred to them. I am sure if they know you are in the country and knowing how serious it is, you would be able to get an appointment earlier, The thing is, they approach their treatment from a team perspective. The onc and the radiation onc review the cases together. The doctors I have spoken to on various occasions were Dr Michael Michael, Dr John Zalcberg, (both medical oncs, specialising in PC and GI cancers) and Dr Trevor Leong (he is the radiation onc. They were all really helpful, if they were unavailable when I called they always called back. It is worth a try, only a phone call. Having said all that, my mum would never go for a second opinion anyway, so we never got to see them.

The second thing I would say is that Tony sleeping and living on painkillers etc is NOT OK. Mum's current onc bases a lot of his views on her success or not with treatment on whether she is living well and feeling well. It does not sound like Tony is doing that at present and it needs to be got to the bottom of, QUICKLY.

My oldest son started school on Thursday too. It was a very emotional day and I can only imagine with what you are going through as well with Tony, how it must have ripped at the heart strings. How did she survive the day? Was she happy about going back on Friday? Lochie wasn't. He had a bad fall on his first day and ripped all the skin off his knees and elbows, so it wasn't a good start for him. Still, if that is the worst that can happen I guess we'll be doing OK.

I hope this is of some help to you and I really hope you can get some action from someone quickly. Once something is being done you will feel much better, it gives you a focus, rather than the fear of now knowing what is going on in there. Thinking of you and take care. Janine

Reply to this message | Return to Main Message List


Responses

*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


Pancreas Home | Surgical | Medical | Basic Sci | Docs | Registry | FAQ | Appts | Chat

Feedback | Pathology Home | Oncology Center Home | Search
Copyright © 2020 The Johns Hopkins University, Baltimore, Maryland
Last Modified: 11/11/2002 10:50 am