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Pancreas Cancer

Update on mum was posted 09/30/2003 05:21 pm by Karin (UK)
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Haven't posted for a few weeks although have tried to visit and read some posts every few days. Here's the update from the last 3 weeks.

Mum eventually went into hospital for them to drain her swollen belly. However when they done a scan they did ascertain it was fluid and gas but decided that, as long as no severe discomfort was being experienced they would leave well alone. To drain would be pointless as it would only fill up again within a few hours. Her confusion was put down to toxins not being released from her body due to fluid retention and constipation. (??)

They gave her Spironolactone and Megestrol Acetate to add to her long list of tablets and sent her home. They said the scan showed enlarged lymph glands in her abdomen but amazingly her liver was 100% clear. They didn't know if the enlarged lymph glads indicated that the cancer had invaded them or not - at a guess they had.

She is now at home but very very poorly and in fact we thought that she had gone on a few occasions over the last few weeks. She is so weak and sleeps most of the time. She continues to eat and drink when she awakes but has developed the most awful shaking in her hands and arms when trying to sit up and eat. Hospice nurse comes in once a week but it is mainly my dad and myself that look after her. I am on long term sick from my work as my dad has prostate cancer, angina and asthma and struggles to cope.

I can't belive what a nightmare these last few weeks have been but somehow feel that the worst is behind us now. Does that sound daft? I don't know what else dramatic can happen at this stage that we've not been through before. Am I being naive?

My mum continues to be pain free and I thank God every day for that. The confusion comes and goes - some days are worse than others. She thought this morning that I was trying to force Russian newspapers on her to read but by tonight was apologising for talking rubbish this morning and we had a laugh about it. She knows when she is talking rubbish but just cannot help it.

It seems to be a continual round of trying to get her to take pills to make the bladder work, to make the bowel work, to digest the food, to make her eat .... and on and on.

Iwonder how long a body can last taking the pounding it is taking. Her body is just skin and bone and nothing else. You can see every bone in her body sticking through. It's so sad.

Relatives - well I could write a book about them. Don't visit her in all the 2 years she's been ill and now they are like flies round the proverbial sh**e. I think they think we're here to ease their consciences and they should get the visit in before she takes her last breath. At least then they can say they visited her !!! Arggggggg. I'm so angry at them and this whole experience has opened my eyes to my so called relatives. Let's just say when this is all over with they will definately NOT be hearing from me.

Anyway, thanks for listening to my update and my vent. I feel a whole lot better now.

Love and good wishes to you all

Karin xx

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