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Pancreas Cancer

Update was posted 09/30/1998 01:31 pm by ChrisR
E-mail Address: four@coral.net

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Hi everyone. Haven't been able/had time to get here for about 1.5 weeks. Last Wed-Sat it was because we live in the Florida Keys and had hurricane Georges to contend with (we all made it through fine in the upper Keys). Anyway, my mom finished up her 6th week of 5-FU, Leucovorin, Trimetrexate on 9/23/98 (a week ago). On Aug 1, her CEA marker was 20, on Aug 17th when she started chemo it was 40 and her CA19-9 was 32000, on 9/1/98 her CEA was 81.3, on 9/21/98 the CEA was 87 and the CA19-9 was 22000. So, the CEA has leveled off (and she had one more week of chemo to go at that point) and the CA19-9 has dropped. Last Saturday she was dehydraed due to nausea and vomiting and went into the hospital and got out yesterday (9/29). She hopes to do a CT scan this week or next week once the nausea is down. A couple of questions: (1) her legs really started to swell today...thoughts on the causes? Does it mean anything? (we are waiting for the Dr to call), (2) I know the dropping markers are good, and so does my mom, but she is really unhappy about the way she feels with the treatment...she knows she can stop if she wants to but any words of encouragement? Could the nausea be from the cancer? Could it decrease if the chemo keeps working? (3) She is really having trouble eating much between the nausea - she even has been throwing up the nausea pills today so they are trying the suppositories. Nothing tastes good either. I've tried all the suggestions for getting her to eat -- small meals, other people doing it etc and it hasn't helped much. Suggestions/thoughts? Thanks again, all the best everyone and thanks to those who wrote to see what was up! :-)

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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