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Pancreas Cancer

Knowing was posted 09/29/1998 08:45 pm by NancyD
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This is a toughie. We wanted to know everything all the time. We actually got upset if the medical people didn't level with us totally. This will depend on the person. Medical people are actually trained to watch for signals in the patient and family that gives them a clue as to what to tell them. Those medical people who just blurt out and insist on telling anyway are a bit crude and there are alot of them. My Mother for instance has had leukemia for 12 years & her sister died of it. She's 83. I asked about her blood counts which she has done monthly and she had no clue what they were!!! I couldn't believe it. She said that the doctor just told her "the count is good" or "the count isn't so good this month" and she accepted that. We kids explained that she could see to what degree of good or bad if she kept track and now she does and she reports that to us each time so we know. It also lets her know if they are going to give her more chemo which they only do to keep it at a certain level. My personal opinion is that with so many aches and pains and all and side effects he will experience, it is helpful to sort out what is and what is not caused by the disease and what is caused by the treatments. If you feel rotten due to treatments, you mentally can tell yourself that you are going downhill and dying soon when that may not be the case. I had to constantly pump up my husband's spirits by explaining side effects causing his moods and feelings and once he accepted that, he would ask if such and such caused this or that which helped him mentally to accept it. Also caused him to "transfer" anger to the treatment (damned chemo) instead of his disease which helped.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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