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Pancreas Cancer

Christine was posted 06/30/1998 09:37 am by Carol R
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Christine, my mum has experienced the exhaustion and no appetite for the past two months following unsuccessful Whipple and 2 gemzar treatments. From what I have read on this chat line this is common. The drugs, and the dis-ease are part and parcel. Also the obvious - if you don't eat you get tired - everything gets more tired and weaker including the voice. The burning feeling that my mother experienced has been assessed as 'heart burn' and some bile. The heart burn has been successfully managed by meds...In other words this is a side effect that can be eliminated get your DR on it. How well is his pain been managed? Christine read, read and read the back information on this chatline - educate yourself and as you see appropriate supply your dad with information. My mum calls this dis-ease 'like a measles epidemic' of the times-help your dad to know that although we may have not heard alot about this dis-ease it is not uncommon. Try to read about other's experiences as information and see the courage of their choices. I am only now, SOMETIMES able to not get emotionally side tracked by the devastation of this dis-ease that I read about. Challenge yourself with creating a love blanket to surround your dad and by example invite your mother to participate. For example massage him as he might enjoy, head, hands, feet and back if possible; apply lavender oil to the temples and a bit under the nose; read to him excepts from an inspirational book - see my posting above for SOUL FOOD;have a plant that blooms within sight so that he can seen change; choose special music too. Sorry about rambling but these things I have found helpful. Mum and I have a set time daily that we do the above...the scheduled versus random time seems important as well. Whatever path your father chooses support him. The stress/fear that he is experiencing now is part of the enemy. It needs to run its course and turned into something positive and productive. By you and maybe your mum creating a healthy, loving, secure, steadfast and nourturing environment your dad's fears should be eliminated. Christine this is a time for tremendous growth for you too. Outcomes for our lives often are unexpected just because we have blinded by our own limited experience. Its a time also to reach out to your friends and family too for their love and support of you. peace be with you

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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