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awful month was posted 08/12/2002 10:40 pm by melissa
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I need to vent...

The past month has been awful. My husband, 37, who was diagnosed with a klatskins tumour (cancer of the common bile duct)last June has had a terrible four weeks. The initial stent that was put in place 13 months ago got blocked with 'sludge' and his jaundice returned. He was admitted to hospital and had a second stent put inside the first stent. His bilirubin (jaundice) went down for a few days and then it started to go up within a week. He was then put in hospital again and we were told there was only a 50/50 chance that they would be able to place a third stent. They feared that he may have signs of secondary cirrhosis and that they would not be able to 'tap'into a flow of bile.

Thanks god they tried. They put a third stent in (plastic type) that drains into the bowel and an external (percutaneous) stent in for 'back up'. Everything was working fine for two weeks.

Last Friday they decided to put in a slightly larger percutaneous drainage tube and perform a liver biopsy to test for cancer and secondary cirrhosis. About an hour after the procedure he began to shake uncontraollably (biliary rigor) and his temperature began to spike. The shaking only lasted 20 minutes and his temperature returned to a normal level and stayed normal for 2-3 hours. So, they dischraged him and told him to come back if his temperature increased.

Within 24 hours jaundice began to return and his temp spiked to 102. I hooked up a drainage bag and brought him to hospital. He is very weak and can barely speak. We found out today that he has sepsis (bacterial infection in the blood). So, he will be in hospital until he gets better. His temperature has been normal for 24 hours. However, he is still very weak.

I spent last night at the hospital because he was too nervous to be alone.

I expect that he will be in hospital for at least another 4-5 days.

I just had to vent. I hope that he will get better and that the cancer had not returned. He has been in remission for 7 months.

Just last month he was able to run 5 km twice a week.

Tonight when I was at the hospital I met a man that has a wife, aged 37, who has bile duct cancer. We come from a small city with a population of only 150,000. I could not believe that I met somebody else that is experiencing the same type of cancer. There is only 3 cases of bile duct cancer diagnosed in our province every year. I gave him the names of the chemotherapy drugs my husband took (gemzar, 5FU and leutovicin (spelling?). I told him to ask her oncologist abou this regime. Normally chemotherapy has little effect on this type of cancer. However, thes drugs were amazing for my husband. He had little side effects and his pain disappeared after the first treatment. It definitely bought him a year of quality life.

I pray for you and your families. God Bless.

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