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Pancreas Cancer

thoughts and suggestions pls. was posted 09/30/2001 04:03 pm by jms
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My husband dignosed with advanced adenocarcinoma of pancreas mets to the liver last Oct. started clinical trial in Dec. with gemzar and trial drug R115777. Has done quite well with good quality of life. Most recent CT scan 9/12/01 shows no interval changes and this has been the case since he started chemo(6 CT scans total). My husband tells the Dr he feels great at his last visit 9/26. He did a lot of phisical activity Thur and Fri. day after chemo, working around the house, going to highschool activities that our daughter is involved in etc.On Fri.we get the bad news that his CA 19-9 has jumped from 790 in July to 3449 (2nd sample). Friday night my husband spiked a temp 102 with chills (hasn't had a temp his whole illness) Had a slow day Sat. and again spiked a temp Sat night 101.2. Seems to be doing ok today but he is fatigued. He absolutly does not want me to call the Dr. (I will tomorrow if this continues) The Dr has schedualed another CT scan on Oct. 10 to compare it to the one of two weeks ago. Aside from the obvious (progression) does any one have thoughts on any of this. I know the chills and fever can be a side effect of chemo. but it has never happened before. One thing of interest (to me anyway)is that in July just 24hrs. after getting a status quo report on that Ct scan he developed severe abd pain with gas and bloating that lasted about a week. He lost 14 lbs from 192lb to 178lb. Blood work was all normal as well as Abd. films. This resolved on it's own and he has been feeling well since. He has only gained a few lbs back however and that upsets him. The CT scan on 9/12 said that his Gallbladder had been surgically removed, it has not. When I questioned the Onc. and surgeon they both said that it may just have been decompressed. (It was never noted on previos scans) I'm wondering if the event of two months ago and the mysterious disappearance of the gallbladder may have something to do with the dramatic increase in the ca19-9. I'm grasping I know and maybe into a hornets nest at that. We need to be prepared for a change in treatment if they determine that his present therapy has stopped working. Any thoughts or suggestions?????????? Thanks for your help

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