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Pancreas Cancer

Docs doing chemo combos? was posted 08/31/2001 09:27 pm by Diane Z.
E-mail Address: 72674.3524@compuserve.com

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My dad was diagnosed with inoperable pancreatic cancer on 11/1/00, the first day of pancreatic cancer awareness month. [Boy, did I ever become aware] He did not have liver or any other known mets. He is in a clinical for RFS 2000 [rubitecan] but was randomized to gemzar. At first I was very disappointed that he got the gemzar, but he has done wonderfully on gemzar. It's been 10 months and he looks and feels good. No pain. He has a good appetite and eats whatever he wants. He travels and has led a normal life except for chemo once a week [3 weeks on/1 off]. He has a wonderful positive attitude; he recently bought seasons ticket for the theater for next year. Until his August ct scan there was no growth. That scan showed a little growth but not enough to be eligible to switch to the RFS 2000. They are repeating the scan next week. By the way, his CA19-9 had gone down monthly until June and July to about half his original number where it went up slightly. In August it went down again.

If the next scan shows any more growth, I don't know how comfortable I will feel waiting until it grows enough to switch to the RFS 2000. I am trying to stay a step ahead of this monster so I am looking at alternatives now. My dad's doctor has been great. He has been very communicative and seems to stay on top of pancreatic cancer treatments. He does participate in clinical trials but it appears he hasn't experimented that much with chemo cocktails on his own. He is open to suggestions. I am trying to locate another doctor in the greater Detroit area of Michigan who has done combos outside of the trial, like gemzar and CPT-11 or gemzar and carboplatin for a consultation. Ideally he would be able to continue with his current oncologist. We are open to looking beyond the Detroit area for a consultation if necessary, but would like to find somebody local if possible. I would appreciate any referrals.

Thanks, Diane

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