Pancreas Cancer Discussion Page:
An Unmoderated Forum
*
 
Support pancreas research*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER

Pancreas Cancer

Help? was posted 12/30/1997 11:11 pm by Susan
E-mail Address:

Message Text
Hi! First, my heart is with each of you. I'm searching for answers, advice, etc. My saga began July 4, 94 at Duke Med Ctr, Durham NC. I was a student at Duke..got sick with what I thought was kidney infection. It was pancreatitis(?). Liver and panc. enzymes were in 1000's. Following 2 ercps and no diagnosis ( a sphyncterotomy) I was released after 5 wks of various treatments. I was told that I could possibly have liver disease or cancer and if my enzymes did not correct I would need a biopsy. I was also told that I might have periphereal vascular disease. Since then I have lived with excrutiating pain in my upper-abdomen, side and back, fatty stools, tiredness, chills. I've spent 2-3 months a yr in various hospitals, just had 4 more weeks and still no diagnosis. I do everything possible to stay off pain meds. The drs. just did 2 more ercps and another sphyncterotomy. Still they tell me that if my enzymes don't come down I'll need a biopsy. I also recently learned that I have a cyst on my brain that may or may not be empty-cella syndrome and that I have severe osteoporosis. Also, my blood sugar is nuts! It fluctuates from 30-220. Amylase and lipase fluctuate from below 30 to over 3000, all within a matter of hours. Which makes getting treatment even more frustrating. I feel like the patient nobody wants. I've now grown so weak that I am applying for disability (I'm 37) from a career I've pursued for most of my life. I'm frustrated with drs. who bounce me around and insult me with insinuations that all I want are the pain meds. I have a stack of narcotic prescriptions and a good med. plan that would pay for them, if that's what I wanted. I went to my local drs. group today, as follow up to this past Duke hospital stay(from mid-Nov to last week), to get blood work. Local Dr. refused to do the blood work and told me to go back to Duke, which is over 400 miles. Actually, I just want some answers. Whatever this is, cancer or not, it is destroying my life, or at least the one I have had. Sorry if I have vented on my first chat but I'm hoping....for what I don't know! I talked to a counselor today at the Am. Can. Soc. I know that I have 100% of the symptoms they list for pan. cancer ( I know that doesn't mean that I have it; but I know that sometimes if it looks like soup, acts like soup, taste like soup, and smells like soup...it may be soup.Anyway, thanks for the space to say it all.

Reply to this message | Return to Main Message List
Responses

*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


Pancreas Home | Surgical | Medical | Basic Sci | Docs | Registry | FAQ | Appts | Chat

Feedback | Pathology Home | Oncology Center Home | Search
Copyright © 2020 The Johns Hopkins University, Baltimore, Maryland
Last Modified: 11/11/2002 10:50 am