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Pancreas Cancer

Treatments was posted 01/31/2001 08:26 pm by Sue N.
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My husband was diagnosed 4/98 with pc. 6cm. with artery involvement. inoperable. He underwent 7 weeks of continuous 5FU with radiation for the 7 wks. M-F. That seemed to take care of the cancer in the pancreas. The cat scan however showed a new spot on the liver. He then started on RFS2000. He stayed on this trial for 7 months. In that time, the liver tumor shrank in half but then started to grow again. We then saw the surgeon who said he could do nothing, the onc. wasn't sure what to do next, and the radiologist who said he wanted to do 5FU again with radiation for 4 weeks this time at a lower dose of radiation. He did such a great job with the pancreas we felt we had to try it. It was in a good location and he felt the damage to the liver would be limited. It seemed to work also. He has been in remission for 17 months with no treatment. Everything is stable at this time.His CA-19 has stayed in the 14-18 range. He takes Vitamin C, E, Shark cartiledge, Milk Thistle, and at times various other vitamins. There is controversy about taking vitamins, but they sure haven't hurt him. He also drinks green tea. We weren't given any hope by the onc. or surgeon in the beginning, only the rad. doc. Hope is an important thing. It can make the difference. Before we started on RFS2000 the onc. wanted us to hold off until necessary, and at that point we went to Boston for a 2nd opinion. Once it was confirmed that the tumor on the liver was new, they suggested Gemzar. We could get that in Maine so we went back to our onc. only to find RFS2000 was available and told him we weren't leaving until we got some treatment going. It was a good 7 months on that, with little side effects. The only problem he had was when we were out of the country and he didn't drink enough water and got some infection which was nothing serious. He had some stomach irriation with it for which he took pepcid. We are very blessed with his good health. He was very healthy to start and in good physical condition. We don't know how long this will last but are definitely enjoying it. The onc. still shakes his head. If we hadn't fought and found this site to know what's going on, he probably wouldn't be here now. I hope this helps you.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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