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Pancreas Cancer

Your Mom was posted 02/23/2020 01:34 pm by Anonymous
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I'm sorry to hear about the biopsy results. But it sounds like you have a good plan.

I am still going to say that your Mom's situation is really usual nonetheless and is better than the typical metastatic PC presentation. If she responds to the chemotherapy, and gets the radiation and they are able to burn out that met, I would ask again about.... surgery?

Meanwhile, it is wonderful you are doing genetic testing. Are you at a Major medical center? If so, ask the doctor if your Mom is eligible for the MATCH trial (does your hospital participate in this trial?), if Folirinox doesn't seem to be working well after they try it. MATCH is a National Clinical trial sponsored by NIH where they take a sample of the tumor and check it for many genetic mutations (more than they are doing for your Mom's tumor now) and if her tumor has one of the special mutations they are studying, she is provided with a FREE specialized and very expensive new medicine that has been shown to be effective for tumors that carry that specific mutation. It is an amazing trial for people like your Mom, and is a nice option to have in the future. And it gets you early access to medications that your health insurance would not likely pay for.

Make sure at every juncture in her treatment plan that you ask about all options of treatment, why they are suggesting the one they are, and if there are any clinical trials that you should be considering.

My Mom was diagnosed more than 10 years ago, and unfortunately passed away after 16 months after diagnosis. But she had much much more disease than your Mom had.

I wish you and your Mom the best. Hang in there. Keep pushing. And Keep planning things for you both to look forward to. A favorite food, TV show, overnight trip, phone call from an old friend, new photos etc..

And keep treating your Mom like.... a Mom. Ask for her advice, listen to her thoughtfully about what she wants to do, let her know you need her and start asking her all the questions you always knew you should. And record her voice, answering them...

Good luck!

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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