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Pancreas Cancer

cysts and duct dilatation was posted 07/03/2019 12:40 am by daughter
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Has anyone had surgery/Whipple to remove pancreatic cysts (probably IPMNs) because they had main pancreatic duct dilation?

My mother died from pancreatic cancer 8 years ago. She was diagnosed with advanced Stage 4 disease, that had spread everywhere by the time it was found. She struggled with it for 16 months before she passed. It was a traumatic experience for the family, particularly for my father.

A few years after my Mom's death, my father had a routine CT scan for one of his medical issues (he is severely disabled since a terrible accident from just before my mother's diagnosis) and they saw some cysts in his pancreas. Since that time, he has had lab tests yearly and multiple MRCP scans to watch for changes over time. Unfortunately, the cysts have increased in number over the years, although most of them are very small, and dilation of his ductal system has progressed over time. This is the first year that his pancreatic duct has increased significantly. He is having another EUS tomorrow.

I can't believe that my father is now considered to be high risk for progression to pancreatic cancer. I don't think he realizes how concerning the last MRCP result is. Per my read of the Hopkins website, they would now recommend a Whipple for him. We do not have a pancreatic cyst expert in our city. I have communicated with a Hopkins expert in the past for advice.

I don't think my Dad could survive a Whipple, with all of his other medical problems and disability. He doesn't realize yet the significance of the most recent MRCP findings, as he hasn't talked to the doctor yet about them. The doctor wanted to do the EUS first, and then I'll schedule a follow-up appointment.

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