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Pancreas Cancer

Newly diagnosed was posted 04/19/2019 12:59 am by Bev
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Thanks for the quick reply. It's been a whirlwind couple of days. In 1998 when my mom was diagnosed, I found and registered with the NFPTR right away. I had been receiving the yearly news letter for almost 20 years when one of them announced a research study in conjuction with yearly EUS screening (which I hadn't been keeping up with and didn't know there was any yearly screening available.) Closest to me was at University Hospital Cleveland. Year one and two where without findings and blood work and secretions where sent to John Hopkins. As far as blood work and CA 19-9 I am not aware of any that were done at that time. Last year I had genetic testing and it was found that I have the FAMMM/pk16 gene. Year number three comes and MALIGNANT CELLS DERIVED FROM ADENOCARCINOMA 1.3 x 1.0 x 1.2 cm where found on the tail. CA 19-9 was then taken as baseline and it is 33.37. My surgeon is Dr. Jordan Winter at UH Cleveland. He is chief of surgical oncology and he specializes in pancreatic cancer research and clinical trials. I have 100% confidence in him, I feel very fortunate (if one can look at any of this in a positive way) that I ended up when and where I am.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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