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I am 61 and was diagnosed Oct 2017 with a solid pseudopapillary neoplasm on the tail of my pancreas starting with a CT scan on 9/11/17. It had metastasized to my lung, liver, and peritoneum and wrapped around the splenic vein and artery. I get to go to MD Anderson. I started Flurouracil, irenotecan, and oxaliplatin on Jan 24, 2018. Later, the CT scan showed me as stable, not spreading, the big one shrinking with necrosis in the middle, but the small ones were growing and becoming more defined. On 2/21, we switched me to Gemzar/ Paclitaxel protein bound. That treatment was much easier to take, although I lost all my hair starting with the first infusion. However, the neuropathy was increasing regularly and it was creeping up my hands and feet. I am single and value my independence, and I want to be able to drive and continue to play my flute. (Through God's mercy, I was able to teach high school English all last year while getting chemo. I just retired in May.) However, the CT scan showed that the small ones kept growing. We took off the Abraxane before the neuropathy became permanent. Scans continue to show the small ones keep growing and there is a new spot in the peritoneum. I am currently continuing the Gemzar and will get another scan in Sept. My blood recovers well, and I can eat. I can drive. I get fatigued quickly. I had an upper GI bleed from a varices at the top of my stomach in May. They gave me 7 (?) Units of blood and put me back together with super glue. :) I had pneumonia last week but they caught it early. That is my story so far.
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