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Pancreas Cancer

Reply was posted 03/17/2018 12:34 pm by Anonymous
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If they say that she has cancer, an oncologist (cancer doctor) that specializes in the pancreas should come and see her right now, while she is in the hospital. You should talk with this doctor extensively about why they think it is cancer, what the biopsies showed, ask if a second opinion is needed, ask for advice on advancing her diet, ask if any other imaging is needed (CT of the lungs? PET scan?), ask why they think the tumor markers are lower now if this is cancer. If it is cancer, which type of pancreatic cancer (there are multiple types), how it should be treated. Let them know you want to bring her to your town, and ask them to help get her there. Ask for doctor recommendations in your area.

Ask that a gastroenterologist and nutritionist come see her now to give advice on how to advance her eating, how to manage her eating/diet/meds ongoing because she no longer has a gall bladder and because of her pancreas issues.

I completely agree that medications and terrible sleep/interruptions at night in the hospital are probably causing her confusion. Ask if a palliative care doctor can come see her. They can help simplify her medicines, give more nutrition advice, help treat her pain more efficiently, give advice on her treatment course so she feel as good as possible, and help your mom think about her new diagnosis and what she wants to do.

Thank you for taking such good care of your parent. I'm so sorry you have to deal with this.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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