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Pancreas Cancer

IPMNs was posted 08/19/2017 02:47 pm by Anonymous
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Wow, that's horrible that you are going through that. Not sure where if Florida you are but by chance are you close enough to the major cancer centers like Moffit in Tampa, Mayo Jacksonville, Gainesville or UMiami?

One thing that comes to mind is actually having something printed out that you could hand to the ER staff that explains IPMNs, pancreatitis and pain and why your tests appear normal when not. I had a similar episode in ER, was told my white count was normal, My white count is never normal hence when I told then to go back and review my chart, they did and I got admitted.

You have to be your own advocate, sad to say. If you don't already you should have a list of your most recent labs and know what your normal is not what they say is normal so that when they tell you different you have the knowledge to dispute it. Yes that takes a lot of energy to fight when your ill but unfortunately you have suffered the consequences of bad medicine.

I would also have a copy of the most recent imaging report so that you have something to compare to.

My experience in the ER is that they don't have the experience to handle cases like these therefore you will have to be your own expert and fight. They also will not take the time to review charts and put the pieces together. They want a quick fix. That is the best advice I could give you.

I wish you the best.

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