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Pancreas Cancer

Any opinions would appreciated was posted 03/26/2017 03:56 pm by Adean
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Husband had whipple 5/2008, 5/23 positive lymph nodes. Chemo and traditional radiation to follow. He was wonderful until 12/2014 when it came back in lt upper lobe of lung. Was put on chemo until 4/2015 and had lt upper lobectomy 7/2015 again he recovered very quickly and was started on preventative chemo but had to stop due to severe weight loss. On 11/23/2015 admitted to hospital with what turned out to be septic shock from a liver abscess that burst. They didn't give him much hope, kidneys went down, and his liver, from the lab results was very damaged, but he beat the odds and pulled thru. His kidneys came back, but he did have bad nerve damage in his feet but managed to walk with first a walker and then with a cane. Was in hospital 10 weeks. Went back to thoracic surgeon for f/u and found nodule on lt lower lobe which turned out to be mets. Was to weak from septic shock to have more surgery so we decided on SBRT radiation. He had 4 sessions with absolutely no complications. First scan 7/16, nodule shrunk but not as much as would have hoped not sure if it was scar tissue scheduled next scan for 10/16. We were heartbroken to find out on 10/16 scan original nodule now 3 times bigger than when it was first found plus additional nodule. The Pulmonologist bx nodules and both positive for mets, SBRT did not work. Back to thoracic surgeon who ordered ct/ pet scan. No sign of mets anywhere else but in lt lower lobe. We decided to have lobectomy. Scheduled for 1/2017. On day of surgery thoracic surgeon surgeon ordered ct scan an came in to talk to us. The original mass/ nodule was 3.8 cm and was on rib, she thought best course was to go home and do 3 months of chemo to shrink mass down, no sign of mets on rt lung , so was willing to do surgery after chemo. Husband did 4 treatments of fu-5 and something newer fu-11, I believe. Had pet scan 3/23/17, several nodules on right lung that had grown while on chemo. Oncologist said he tried pretty much every chemo they had, my husband does not do good on chemo even with reduced dosage. So said he was terminal and sent him home with hospice. We were shocked and devistated. His ca19-9 which was done beginning of March was 200. I have put off hospice because I would like a second opinion but really don't know what to do at this point. Any thoughts or suggested would be appreciated. Thank you.

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