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Pancreas Cancer

conservative.... was posted 02/03/2017 10:14 pm by Anonymous
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Even if you have a higher risk cyst that may progress into a cancer, these cysts tend to transform into a lower risk cancer and take many years to change/progress/grow.

So I agree with the others so far that I would be very very conservative and avoid surgery at all costs...especially if you don't have any symptoms. I would get second or third opinions if surgery was ever considered.

Here is a link with the best up to date results on what makes a cyst higher/lower risk, and a list of the very best doctors around the country for assessment of cysts. If you live near any one of these doctors you could check with them for an opinion.

My dad is 74 and now we check his cysts with an MRI/MRCP every 1-2 yrs (I'm stretching it...) and we check the pancreas lab tests every year (amylase, lipase, HgA1c, liver function tests, and the markers CA19-9 and CEA).

If the cyst continues to grow quickly, a very good gastroenterologist can try to biopsy the 'fluid' inside the cyst to better assess it for risk stratification. This would be done during a test called an endoscopy ultrasound, and you would want the best doctor to do that to increase your chance of getting a sample successfully (it is difficult). This is a mildly invasive test that does require some anesthesia, so I would also be a little reticent to do it unless the cyst was growing quickly, developed more concerning characteristics (see the link) and you thought you might be willing to undergo surgery to remove it. Otherwise.... don't touch it.

But I don't wish surgery on my father, so likewise, I will not wish it for you!

http://www.pancyst.org/screening.aspx

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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