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Pancreas Cancer

Get a second opinion was posted 08/20/2016 05:54 pm by Anonymous
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Jim - Each case in fighting this disease still remains individual so the best idea is to go for a second opinion or send your records and proposed treatment to a major PC center such as JHH or MD Anderson or I believe there are centers in NYCity some would recommend. At least it will confirm what has been recommended or possibly suggest other combos suited to your situation.

Also as other threads indicate, find someone who can help you deal with the emotional aspects of fighting PC to help keep a balance in your overall health. You also would do well to have a proactive palliative care doctor to deal with any side effects for as good a quality of daily life as possible. Find a support system so you can resource out daily activities of life and just focus on yourself. There is no one way to decide how much treatment to opt for or not as you may do exceedingly well, but do share your wishes with those close to you.

WE have a friend who has been Stage 4 with spread to the lungs for almost three years now. First treatment with Folfionox gave him two years of stability and several months ago the growth started again, but with aggressive treatment over several months, he is once again in remission. We never realized that his CA-19 numbers have never ever gone above 200 - 300 in this entire journey. The one thing he has done was to have had a positive attitude and he has kept up exercising as he could (which recently has not been much.) I know from his recent conversation at dinner a few weeks ago that he was going to be considering whether to stop treatment if no positive progress for just such reasons as you mentioned. So just remember do what is best for you as there is no one way to deal with PC.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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