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Pancreas Cancer

Whipple was posted 08/10/2016 10:20 pm by rebeckels
E-mail Address: rebeckels@yahoo.com

Message Text
I am a caregiver for my husband. This is not a story of hope and happiness tho I have still not given up on that! Last July Bobby had a heat stroke. He became jaundice a few weeks later. August 1st he went into the ER. Was diagnosed with pancreatitis and had a stent put in. 6 weeks later they removed the stent a few days later he was back at Mercy in what we thought at the time was level 10 pain (and I've had 2 kids). On October 5th we got the live changing news no one wants to hear especially being only 35 years old. Stage 2 Pancreatic Cancer...we live an hour and a half away from Mercy and I had to be at home with the kids 8 and 10 and had be at work. He had to get the news alone. That stay at mercy was 2 weeks I got to go up there on Saturday night and had to come home on Monday. That visit he went from 145 to 111 lbs and had caught an infection in his blood and when they sent him home he had to have a pic line and 3 times a day I had to give him antibiotics through it and I became quite the pro at it! A nurse would come to our home once a week to get labs and change his dressing over the pic. We got married right before he had his surgery. We were so scared but neither of us showed it to anyone we new we had to be strong and we were up for the fight. I did all the research I could find but would only share the more uplifting stuff to him since he had so much more to worry about. November 4th Day of the Whipple...The surgery lasted forever and the whole time his I felt like I was going to throw up The coffee was horrible and his family forgot to leave the drama home! I was completely numb for the 8 hours he was in surgery. That night in the ICU I would not leave him as he slept. I did more research but never in all I searched prepared me for the truth and that angers my the most! They don't tell you about the pain and the way they word it doesn't ever seem as bad as reality! He came home on November 14th 2 days before his 36th birthday. Still so full of hope and determination that by summer he would go back to work on light duty and life could get back to normal. He started chemo in January and everything was going good he did have a lot of pain and they just keep raising his pain meds. Started radiation in May it has been down hill so fast since then. His pain level now is a true 10 and he had several CT scans to find out what is wrong and no one can give us any answers. We go in tomorrow for yet another oncologist visit. The worst part of this whole thing is that once Bobby found out he wasn't getting any better he got very depressed. He can't handle the heat so he has to sit inside all day he now weighs 106 lbs and walks hunched over. He can't sit lay down walk stand go o bed or even eat with out a lotta pain to follow. He is starting to say things I know he does not mean (or hopes he doesn't mean) He wishes for death everyday now and doesn't want to see Doctors anymore. It's hard on him and it is getting hard on the rest of us now too. No matter how hard it get I will never give up on him and I will never stop loving him. No I do not know how he feels but all I can do is try try to stay strong and try to make his day brighter in anyway I can. I WILL NEVER GIVE UP because I care!

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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