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Pancreas Cancer

survivingi was posted 07/20/2016 11:43 am by Bill
E-mail Address: dickmanpriscilla@yahoo.com

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Hi tell me a little about your initial stage and txt and times you received them What worked and what did not. I had stage IIa totally resectable with no nodules or margin invasion. Had whipple 8/20/15. Off all pain meds by 9/28 and eating well gaining weight . Began gemzar had five of the six cycles. Had to stop after five cycles because of edema in thighs and kidney tests rising. CA 19-9 was back to 37. After a month off gemzar the pain in the back/shoulder blade began with intensity-I had been doing a lot of work outside. The marker began to rise late May 2016 125 to now July 9, 2016- 586. Not able to get pain under control had depomedrol injections (steroid) and then all sorts of medications, Neurontin 1800 daily, tramadol etc. Nothing worked and then developed sodium deficiency not eating or drinking-pain was so bad. Finally they put a very low pediatric dose of fentanyl patch and the pain is under control. All scans have been neg every three months mri and cts. Latest pet was inconclusive with a small spot. Since the marker is up they want to start Folfinox or try Gemzar and Abaxane.

Other than this set back with the pain out of control and no explanation then the sodium dropping to 121 I have been in good health. Sort of at a loss so would love to hear your txt and regimen and any advice you might have.

Please feel free to email at my personal email address.



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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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