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Pancreas Cancersurvivingi was posted 07/20/2016 11:43 am by Bill
E-mail Address: email@example.com
Hi tell me a little about your initial stage and txt and times you received
them What worked and what did not. I had stage IIa totally resectable with no
nodules or margin invasion. Had whipple 8/20/15. Off all pain meds by 9/28
and eating well gaining weight . Began gemzar had five of the six cycles. Had
to stop after five cycles because of edema in thighs and kidney tests rising.
CA 19-9 was back to 37. After a month off gemzar the pain in the
back/shoulder blade began with intensity-I had been doing a lot of work
outside. The marker began to rise late May 2016 125 to now July 9, 2016- 586.
Not able to get pain under control had depomedrol injections (steroid) and
then all sorts of medications, Neurontin 1800 daily, tramadol etc. Nothing
worked and then developed sodium deficiency not eating or drinking-pain was
so bad. Finally they put a very low pediatric dose of fentanyl patch and the
pain is under control. All scans have been neg every three months mri and
cts. Latest pet was inconclusive with a small spot. Since the marker is up
they want to start Folfinox or try Gemzar and Abaxane.
Other than this set back with the pain out of control and no explanation then
the sodium dropping to 121 I have been in good health.
Sort of at a loss so would love to hear your txt and regimen and any advice
you might have.
Please feel free to email at my personal email address.
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