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Pancreas Cancer

too soon... was posted 04/20/2016 10:30 am by Anonymous
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You just had surgery. It is too soon perhaps to think you are back to your prior baseline.

Who is following you since your ovary surgery? Are you taking iron (VitronC is the best...) to improve your anemia, since this will help your fatigue? Are you taking Miralax or another stool softener with your iron, since iron causes constipation? Are you back to sleeping well, exercising regularly, and working your normal schedule? Most surgeons are not very helpful in getting you back to feeling great. So work on that with your primary care doctor.

But I do strongly feel that once you have had a whipple, you should continue to have follow-up surveillance for recurrence indefinitely. This should include yearly (AT LEAST) CA19-9 and CEA levels and probably CT scans (don't forget the lungs!!), and probably HgA1c and fasting blood glucose to check for new diabetes. If I had unexplained new fatigue/depression/weight loss/abdominal pain or turned yellow (!), then re-scan.

Is an oncologist still following you? If not, ask your primary care doctor to assist with regular screening yearly. Or else, just go back yearly to see your oncologist.

FYI - constipation is not typical for a PC recurrence.

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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