|*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions. |
I posted a few days about my dad's recent scan showing mets to the liver and increased severe pain. He is no longer enrolled in the clinical trail at Johns Hopkins. We have been scrambling to find trial options, make appointments, etc. As we make decisions we are looking at:
first diagnosed March 2015- stage III
Tried chemo- Folforinox, in May 2015 first scan showed mets to peritoneum
Got into the GVAX/Nivolumab/Listeria trial at JHH and were on trial from July 2015 to April 2016- all scans during the trial showed STABLE.
Recent scan April 2016 showed mets to liver.
He has just come home after 4 days in the hospital due to severe pain and 3 trips to the ER in a week. We worked with pain management and palliative care team to monitor his pain and get him on a regimen to go home with. (it has been a very rough past few weeks)
What are his best options now? His appointment is with an oncologist from a Sloan branch facility. I am suspecting she will recommend the chemo regimen that he hasn't had before- Gemzar/Abraxane. We looked into trials but I don't know what is best at this time. I feel like he needs treatment immediately, however his body is weak and he's lost a lot of weight- I'm afraid of what they will say tomorrow. Has anyone been at this low point?
What questions should we be asking tomorrow?
I can't tell you how much I appreciate your feedback.
God Bless you all.
Reply to this message | Return to Main Message List