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Pancreas Cancer

My Whipple Life was posted 04/02/2016 04:00 pm by Anonymous
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Wow. Sorry to hear that this is happening to you, especially being so young. I got diagnosed at 49yrs. As for me it's been 2 years and I live with chronic diarrhea, stomach pain if I don't load up on the Creon after eating the simplest meal but the horrific pains that cripple you finally stopped at about 1 year after surgery.

I have yet to gain back my pre-surgical weight but was able to gain 10 pounds back after 15 months. I want to gain another 10 but I have given up on that as it seems impossible for me. I barely hold on to my weight now.

Eating for about 1 year after surgery was very painful. Now its better but have that full feeling often or just don't have an appetite.

I'm not sure which is worse the diarrhea, the pain or all the other crap that happens. I had an 'accident' this morning but am too ashamed to discuss it with anyone. Thankfully I was home alone.

Why do you have 2 types of incisions horizontal and vertical? Did you have to have a second surgery?

I have found this forum to be much more supportive that speaking to my doctors. They assume because I 'look' good then I am back to my pre-surgical state. Either they think you should be 'better' now because time has passed or they just don't have a clue.

What I can say to you is yes I understand what you are saying. My experience has not been the one that was promoted at the hospital-'Go back to work after 3 months' and my life will be normal or 'my other patient is playing tennis'.

It's far from the normal they offer. This is what my 'normal' is now. Taking 20-25 pills a day so that I can eat and absorb vitamins. Having diarrhea up to 10 times a day now (use to be worse). Knowing all bathroom locations is a must. Being fatigued at times so you have to take a mid day nap. Dealing with nausea (thankfully the vomiting finally stopped 1 year post op). Weakness most of the time. Random pain. The unpredictability on how I'm going to feel as there are really good days and bad days. Unable to work. This is probably the worse.

PC affects us so differently and I don't want to sound like a whiner as their are others who are suffering so much more but the reality is my life stopped being 'normal' the day I had surgery.

When I hear about long term survivors, I get very excited. I want to be the one who beats this but I also want quality of life.

I hope this information helps you in some way. Take care and good luck to you!! Sending you lots of healing.

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