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Pancreas Cancer

What shall I do? was posted 01/18/2016 10:11 am by Stephanie
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My Mom (68, PC body tail, 3 positive limphnodes,operated at end of April, 3 cycles Gemzar+RT finished on the 13th december, with no concomitant chemo due to problems. Local recurrence of the cancer in late November, during RT) went to hospital for some fever and pain. She has been given antibiotics but after 5-6 days the fever appeared again (not high: approx 37.5 C, but she is taking paracetamol, 1g three times a day )and was sent back home. CA 19-9 went up from 1800 @ end of November, during RT, to 12000, last week.The pain therapist, this morning, in practice told me she is going to die, could not speak to her oncologist who wants to wait for the result of the CT scan on the 28th January but they seem to know what will happen soon and I understood they could even decide not to do any further chemo, despite the blood test is not so bad and she has white blood cells ok and red cells just below the lower limit (3.7 milion/ul), a bit low creatinine0.34 mg/dl( which I do not know what it means). Mom is weak and depressed and I am too: it's now getting very hard for me to help her, I do not know what to do. Wish I could come to Hopkins but it's very very far and Mom cannot travel,and it's getting late and I do not know whether it's better for her that I stay with her waiting for the end or do something practical (which I would prefere), if only there is something to do. This wait is terrible!! Noone tells anything before the result of the CT scan, before will be too late, I say for searching help somewhere else!!Oncologists keep saying nothing but they should know what they intend to do in the hypothesis of different scenarios...I am desperate and tired!! I have been reading on this board about people living with stage 4 cancer and mets and keeping fighting and got so much help and moral support from here but we are, in practice constanly told that the end is close and after a while this is hard! Mom was a lively, very hard worker and very very strong woman, now I cannot recognise her any more! I am really desperate and alone with Mom in this fight: what shall I do? Is there something that can be done for her?

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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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