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Pancreas CancerViral outreach for our cause!! was posted 01/14/2016 10:32 pm by Tracy
I don't post often...I'm more of a 'lurker' who checks in quietly and
regularly. This disease has impacted my life in ways I could never have
imagined. I lost my dad almost 5 years ago, and I miss him every minute of
every day. His mom also died from the disease, and I will soon be having my
second colonoscopy/EUS at University of Chicago (where I live) as part of the
screenings I now participate in.
3 years ago, my best friend lost her husband a day before their first wedding
anniversary from PC. She miraculously conceived their baby on their
honeymoon and he was diagnosed right after they returned. Their beautiful
daughter was 8 wks old when he died in his mid 40's.
On January 1st another friend and member of my community, at 41 years of age,
was diagnosed with PC. He has a beautiful wife and 3 children 9 years of age
and younger at home. This shouldn't be happening, and I am just so mad!
So we need to continue to fight for this cause that affects all of us on the
board. And I am asking for help. When my dad got sick my husband didn't curl
up into a ball like I did. He wanted to fight and become involved in the
fundraising efforts that will hopefully one day change the outcome of this
disease so others don't have to go through the nightmare affecting us all.
He became incredibly involved with the Rolfe foundation (rolfefoundation.org)
the Chicago based pancreatic cancer foundation that fights tirelessly to
raise money for early detection. 100% of proceeds to go amazing hospitals,
such as Johns Hopkins, to help research early detection which we know is just
And here's where we need involvement, and it calls for a movement! I live
in Highland Park, Illinois. When my friend, this young man diagnosed 2 weeks
ago received his diagnosis, his friends took the reins to initiate
awareness!!! The movement is called #waxoffpancreatic cancer. For those of
you on Facebook/social media, you are probably aware of the ALS ice bucket
challenge. That idea went viral across all social media, bringing attention
to another horribly underfunded disease and raising significant money for
research. These movements start somewhere and a group of dedicated friends
are trying to start this to bring awareness to PC. If you go to the Rolfe
foundation page, and go to there Facebook link, you can see just what one
person can start, all too bring a smile to their friends face while he begins
treatment, and to raise research dollars.
As you will see, amongst the silliness and humor of the videos, the
underlying goal is try to raise research dollars ( to any PC organizations
dedicated to the fight - PanCan, Rolfe, Lustgarten, Sky, etc...) while
bringing awareness in a viral widespread fashion.
If you are Facebook savvy (or any other social media outlet) and want to get
involved, PLEASE...start your own movement with the #waxoffpancreaticcancer
challenge! And if you have any questions about what we're trying to do,
please let me know and I would be glad to discuss it in more detail. Thank
you for taking the time to read this, and my prayers are with everyone
dealing with this horrific disease.
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Reply - Anonymous 01/16/2016
*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
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