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Pancreas Cancer

Viral outreach for our cause!! was posted 01/14/2016 10:32 pm by Tracy
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Hi everyone, I don't post often...I'm more of a 'lurker' who checks in quietly and regularly. This disease has impacted my life in ways I could never have imagined. I lost my dad almost 5 years ago, and I miss him every minute of every day. His mom also died from the disease, and I will soon be having my second colonoscopy/EUS at University of Chicago (where I live) as part of the screenings I now participate in. 3 years ago, my best friend lost her husband a day before their first wedding anniversary from PC. She miraculously conceived their baby on their honeymoon and he was diagnosed right after they returned. Their beautiful daughter was 8 wks old when he died in his mid 40's. On January 1st another friend and member of my community, at 41 years of age, was diagnosed with PC. He has a beautiful wife and 3 children 9 years of age and younger at home. This shouldn't be happening, and I am just so mad! So we need to continue to fight for this cause that affects all of us on the board. And I am asking for help. When my dad got sick my husband didn't curl up into a ball like I did. He wanted to fight and become involved in the fundraising efforts that will hopefully one day change the outcome of this disease so others don't have to go through the nightmare affecting us all. He became incredibly involved with the Rolfe foundation (rolfefoundation.org) the Chicago based pancreatic cancer foundation that fights tirelessly to raise money for early detection. 100% of proceeds to go amazing hospitals, such as Johns Hopkins, to help research early detection which we know is just so crucial. And here's where we need involvement, and it calls for a movement! I live in Highland Park, Illinois. When my friend, this young man diagnosed 2 weeks ago received his diagnosis, his friends took the reins to initiate awareness!!! The movement is called #waxoffpancreatic cancer. For those of you on Facebook/social media, you are probably aware of the ALS ice bucket challenge. That idea went viral across all social media, bringing attention to another horribly underfunded disease and raising significant money for research. These movements start somewhere and a group of dedicated friends are trying to start this to bring awareness to PC. If you go to the Rolfe foundation page, and go to there Facebook link, you can see just what one person can start, all too bring a smile to their friends face while he begins treatment, and to raise research dollars. As you will see, amongst the silliness and humor of the videos, the underlying goal is try to raise research dollars ( to any PC organizations dedicated to the fight - PanCan, Rolfe, Lustgarten, Sky, etc...) while bringing awareness in a viral widespread fashion. If you are Facebook savvy (or any other social media outlet) and want to get involved, PLEASE...start your own movement with the #waxoffpancreaticcancer challenge! And if you have any questions about what we're trying to do, please let me know and I would be glad to discuss it in more detail. Thank you for taking the time to read this, and my prayers are with everyone dealing with this horrific disease.



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*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


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