Pancreas Cancer Discussion Page:
An Unmoderated Forum
*
 
Support pancreas research*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER

Pancreas Cancer

UCSF results was posted 05/23/2015 01:22 am by Jackie
E-mail Address: j_rosemeyer@sbcglobal.net

Message Text
Well diagnosed in August of last year with Stage 4 met to the liver. My oncologist was telling me that surgery may be possible. Did Forfirnox for 6 months...neuropathy hands and feet main lasting side effect and poor interest in food. During the Forfinox lost 45 pounds. The goal according to my Oncoligist was surgery...which gave me hope and the reason to go thru this chemo, feeling not well all the time. Eating but lack of appetite. Gained 15 pounds. Well long story short the Forfirnox did a great job..two small spots on the liver that have not grown since 2/27...and the pancreas shows a shadow. Cea and Ca119 are within normal range. Well went to UCSF yesterday the surgeon says that he will not do the surgery because maybe this is just scar tissue...the Oncoligist wants me to stop chemo completely all summer without any blood test until the end of Summer it seems. Still reeling from this news and them washing their hands of any hope at all. The Oncologist ordered Prozac which I started today. Has anyone stopped chemo completely for this many months and had any positive results in the end. Just so tired iof feeling ill...is it right to give up? Hate to be doing this to my family...complaint s , anxious., depressed and just notihingto do anything at all to fight this. Again how long do people with Pancrreatic cancer go on a chemo break and have had favorable results? Also should I start palative care because of what they say.? I understand this if not covered by Medicare. So many tough decisions. UCSF has no clinical trials that I would match up with. An opinion from UCSF carries much weight. Has anyone

Very depressed and know that I am blowing what little time I might have. Just want to hide in my bed and tire very easily. . .

Reply to this message | Return to Main Message List


Responses

*DISCLAIMER: This page is an unmoderated forum, and the opinions expressed herein do not necessarily reflect the viewpoint of The Johns Hopkins Medical Institutions. Patients are advised to consult their personal physicians before making any medical decisions.
FULL DISCLAIMER


Pancreas Home | Surgical | Medical | Basic Sci | Docs | Registry | FAQ | Appts | Chat

Feedback | Pathology Home | Oncology Center Home | Search
Copyright © 2020 The Johns Hopkins University, Baltimore, Maryland
Last Modified: 11/11/2002 10:50 am